Fighting Dystonia

CRPS, Edema & Dystonia this morning.

My Foot is Curling Under

Dystonia is “a state of abnormal muscle tone resulting in muscular spasm and abnormal posture, typically due to neurological disease or a side effect of drug therapy.” According to the Oxford Dictionary online.

Mild forms of Dystonia are things like writer’s cramp or musician cramps from repetitive motion. It can affect the limbs, neck, and face.

I have personally fought Dystonia for years now because of the CRPS in my left foot. My foot wants to curl under every time it hangs off of something, like a barstool or chair that’s too high for me. It happens in bed at night too and I wake sometimes with pain. The muscles in my foot contract and spasm and I have to place it flat on the floor or wrap it to stay straight.

I message my foot and use a heating pad, yes, heat on the already CRPS-hot foot, daily. The more I’ve walked in a day the worse the Dystonia gets. The more I’ve been stressed or tired the worse it gets. I also use a muscle relaxer as well.

We acquire Dystonia from an injury, being genetically predisposed or there’s no clear cause. There’s no cure for Dystonia, but sometimes it can be partially reversed. And, some data states that it will get to a certain point and stop getting worse over time.

Like with a muscle relaxer, Botox is another method for relaxing the muscles.* We can also get some targeted physical therapy.

Dystonia can also cause depression and a sense of dislike for the limb or affected body part. This can cause neglect for the body part as well. For me, it feels like my foot is not behaving. I literally get angry at it sometimes. There was a time close to my CRPS diagnosis that I hated my foot and wanted it gone.

These feelings and the physical pain are very hard to deal with emotionally and spiritually.

Living with Dysfunction

Here are some thoughts on living with Dystonia or any illness, disease or disorder:

  • Find a good support system.
  • Listen to your body.
    • Get sleep, rest, good nutrition, and exercise.
  • Get help with stress, depression and anxiety.
  • Stay social and don’t isolate.
  • Do things you enjoy.
  • Find more information online by searching for Dystonia.

Be blessed,

Jana

P.S.: I pray you are unbent and unbroken.

* Dystonia: Essential Facts for Patients from the International Parkinson and Movement Disorder Society.

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